Interested in Joining the PAC?

The Patient Advisory Committee (PAC) provides an opportunity to patients, transplant recipients and care partners for the purposes of lending perspective and assisting in the promotion of patient, family and care partner engagement in ESRD care, as well as promoting positive relationships between patients, provider staff, ESRD stakeholders and the Network. The PAC consists of three separate levels of involvement: Members, Representatives and Chairpersons. Representatives and Chairpersons. The Patient Advisory Committee is for individuals who are interested in:

Member Level:

  • Educating themselves on kidney disease and ways to be a healthier patient living with ESRD
  • Becoming an empowered patient by being an active participant with your personal care team
  • Learning more about the patient advocacy and quality improvement activities

Representative Level:

(Must be nominated by their social worker or another facility representative and complete a certified peer mentor training course)

  • Developing and Expanding their advocacy skills and become more involved with their Dialysis Facility and ESRD Network
  • Speaking with their ESRD peers and sharing advice and experiences
  • More education and training surrounding ESRD and other kidney diseases

Regional Chairs:

(must serve a PAC Representative for at least 1 year before consideration)

  • Assist supporting patients and activities in your region and talking with other patients and care team members to obtain their perspectives.
  • Provide feedback on the effectiveness of the Network’s patient related activities and assist in developing resources and tools that will support reaching quality improvement goals
  • Review and make recommendations regarding patient related health care messages, materials and activities planned by the Network.

Once involved in the PAC a patient may be interested in serving as a Subject Matter Experts (SME).  SMEs are individuals who are able to devote more time each month to be involved in planning quality improvement activities with the Network and other Federal agencies including participating on national conference calls.

 Becoming a PAC Member

If you are a dialysis patient, transplant recipient, family member, or care partner and are interested in becoming a PAC member, speak with your dialysis facility social worker or contact the Network.

PAC Recruitment Materials:

Tools and Resources: 

  • PAC Education Station Lobby Day Tips and Ideas Slides

 

Group of Hands

PAC Coordinator:

Jenna Huff, MSW
Community Outreach Coordinator
919-463-4529
jhuff@nw6.esrd.net 

Events

Patient Advisory Committee Kick-Off Webinar Slides

Facility Representative Orientation Call Slides

Patient Advisory Committee May Meeting Flyer

Patient and Caregiver Support Groups Slides

Patient Advisory Committee July Meeting Slides

Patient Advisory Committee July Meeting Flyer