Interested in Joining the PAC?

The Patient Advisory Committee (PAC) provides an opportunity to patients, transplant recipients, and care partners for the purposes of lending perspective and assisting in the promotion of patient, family, and care partner engagement in ESRD care, as well as promoting positive relationships between patients, provider staff, ESRD stakeholders, and the Network.

Take a look into Keith's story and how he remains optimistic as an ESRD patient and PAC member:


Learn more about the PAC:

The PAC consists of three separate levels of involvement: Members, Representatives and Chairpersons.

Member Level:

Educating themselves on kidney disease and ways to be a healthier patient living with ESRD
Becoming an empowered patient by being an active participant with your personal care team
Learning more about patient advocacy and quality improvement activities

Representative Level:

(To serve at this level, you must be nominated by your social worker or another facility representative and complete a certified peer mentor training course.)

Developing and expanding advocacy skills and become more involved with their dialysis facility and ESRD Network
Speaking with their ESRD peers and sharing advice and experience
Expanding education and training regarding ESRD and other kidney diseases

Regional Chairs:

(To serve at this level, you must serve as a PAC Representative for at least one year.)

Assist supporting patients and activities in your region and talking with other patients and care team members to obtain their perspectives
Provide feedback on the effectiveness of the Network’s patient-related activities and assisting in developing resources and tools that will support reaching quality improvement goals
Reviewing and making recommendations regarding patient-related health care messages, materials, and activities planned by the Network.

Once involved in PAC, a patient may also be considered to serve as a Subject Matter Expert (SME).  SMEs are individuals who are able to devote more time each month to be involved in planning quality improvement activities with the Network and other federal agencies including participating on national conference calls.

Becoming a PAC Member

If you are a dialysis patient, transplant recipient, family member, or care partner and are interested in becoming a PAC member, speak with your dialysis facility social worker or contact the Network.

PAC Recruitment Materials:

Registration Form
Volunteer to be a PAC Representative Information Flyer

Tools and Resources: 

PAC Education Station Lobby Day Tips and Ideas Slides
QAPI Patient and Family Meeting Notes Tool

 

Group of Hands

For more information:

IPRO ESRD Network of the South Atlantic
Network 6 (GA, NC, SC)
909 Aviation Parkway, Suite 300
Morrisville, NC 27560
Main Phone: 919-463-4500
Toll-Free Patient Line: 800-524-7139
Fax: 919-388-9637
 ESRDNetwork6@ipro.us

PAC - Patient Facility Representative Recruitment Forms

ESRD Network PAC Manual
Patient Facility Representative Orientation Guide
Patient Facility Representative Confidentiality Agreement

Events

March 2020 PAC Meeting Slides
January 2020 PAC Meeting Slides
September 2019 PAC Meeting Slides
January 2019 PAC Kick-Off Webinar Slides
March 2019 Facility Representative Orientation Slides
May 2019 Patient and Caregiver Support Groups Slides
July 2019 PAC Meeting Slides